Moderator: friends, Hello everybody! Welcome to the Sohu chat room guests.
Netizens, good afternoon! Welcome to the Sohu health interview, the interview today, our guest a little between the three special guests, not as we were previously are experts in various diseases, today should be said that the three patients were hepatitis B carriers, but the three are not ordinary users, who are famous to shine on the liver of hepatitis B forum moderator.
because the public The lack of knowledge about hepatitis B and certain unscrupulous exaggerated the progress of medical institutions, resulting in the community for a long time in this patient population are hepatitis B has a big misunderstanding, and this group has also been a variety of unfair treatment, To do this go to the liver to shine on Sohu health interests of the Forum Moderators armored cavalry, Beijing Moderators shadow, gathering friends Version Sohu former Moderator of wormwood Health Interview guest rooms cool their own experiences, tell their stories, and for hepatitis B users They answer questions online.
moderator with the first of three friends to say hello.
wormwood cool: Hello everybody! I'm cool wormwood.
shadow: Hello everybody, I was the Beijing-Tianjin version Moderator shadow.
armored cavalry: netizens Hello everybody! I am armored cavalry, the rights and benefits moderator.
Moderator: First, please explain hepatic armored cavalry forum to shine.
armored Iron Horse: a picture for the liver is the largest forum for public forums HBV carriers, there are now 20 million members registered members, in September 2001, a Ph.D. from Shanghai we call him the old wheat, was founded by him in this forum. According to the current phase of liver Forum
more than 20 pages in total, including the medical aspects of the layout, and emotional communication, spiritual sustenance, and the layout of such meeting friends, as well as advocacy, science advocacy, legal advice so that layout. for the hepatitis B carrier groups to provide a full range of services online for everyone to provide such a platform for the exchange.
Moderator: Forum every day, inside the post count number?
armored cavalry: It is now generally in the 2 thousand.
Moderator: What forum is more concerned about what we?
armored cavalry: the forum is generally more concerned about the exchange version of patients, gathering the exchange version of the rights and benefits.
Moderator: There are a question in advance users are very interested in, respectively, when the three came into contact with the forum, then what is the mentality to do this public website work?
wormwood cool: I was 02 8 When added to the Forum in January, when the forum is not very big scale, there was no rights in the content, just give us a space for exchange, mainly patient communication space, was the most active is the fun park, as well gatherings friends.
how I was into this forum does, in fact, I found out itself in 2002 he was hepatitis B carriers, then I went to online search data, inadvertently search for this forum, I think there is such a existence of the forum to find sustenance enough to create a common language that can be felt, so I went in, and very active, almost daily dwell on it, a time to meet friends when a version of the moderators, when 03 began when the moderator had.
Moderator: With a wish was also involved, to find sustenance in such a sense of feeling.
wormwood cool: The main thing that we have the same language, chat with friends quite happy, and I'm relaxed, I feel very good, very warm.
Moderator: Moderator shadow of Beijing and Tianjin version.
Shadow: I was in 2001, it should be said that I first entered the forum who We have just started called Happy long, the equivalent of a person establishes a personal friends, more and more people joined later. there was only one plate, there was no forum for the formation of large scale, and slowly get the fun park, and forums, until the end, it is a picture for a large forum for hepatitis B liver, was also holding the attitude of friends, but also want to know bunch of friends when they are carrying, and treatment of any experience in this area, there is a mutual exchange, because, after all The same carriers may later get along, play a greater number of parties.
Moderator: You should be one of the founders of the network.
shadow: can not founder.
wormwood cool: veterans .
Moderator: Moderator armored cavalry.
armored cavalry: I told them they should be counted more than two qualifications, financial viability of the most potential.
Moderator: the fastest growing.
armored cavalry: nor say. I was in August 2003 when the medical information in the search inadvertently search to an article about an anti-viral treatment is about the article, the article found by the liver to shine forum . because I was doing anti-viral treatment, it is very concerned about this topic. When I found this forum after I think this is what I long to find a place, because frankly I, as a hepatitis B carrier, or more precisely a chronic hepatitis, has a very strong desire, want and hepatitis B carriers friends, and their own people the same boat, to exchange. because in life and people around the exchange is very difficult, there are considerable difficulties and psychological barriers .
Moderator: already know the people around you?
armored cavalry: Yes, of course know, but like some of hepatitis B carriers of our unique psychological, specific problems, not the non-carriers fully understood. First one is the experience of treatment, because treatment is very chaotic, ad very much, so I hope that from their own experience by which access to some of the more reliable method of treatment, the treatment channel, or be able to verify I'm working on anti-retroviral treatment is not effective, is not reliable, this is the first.
second, because I was in patients with chronic hepatitis, off sick for a long time, so it should be said that not a lot of friends in real life So there are a very strong desire to be able to share the Internet and, in particular the accessibility and exchange of common language.
Moderator: may feel better.
armored cavalry: Yes . So when I found a picture for the liver after the forum that this is what I looking for, finally found.
Moderator: The last version of how to become moderator rights do?
armored cavalry: Since I was 90 early years to university and college graduates, that's the whole community is very tolerant to hepatitis B carriers, hepatitis B is less fear, it should be said that the phenomenon of discrimination is almost non-existent, like myself go to school, employment did not encounter much trouble. So when I log in the liver relative to 2003, according to Forum, they suddenly find that old probably younger than me, young comrades, to explain our forum users to shine on the liver of inter-called comrades in arms, fighting side by side means that , fight disease, overcome the virus to overcome discrimination, God of War prejudice. I found that around the age of the young fellow than I, who in employment, schooling, social interaction, love and marriage there was a very big obstacle, can be said that injustice very serious, give me a very big contrast, very shocked, I felt only a decade of discrimination between the hepatitis B to scratch, and worse. If this trend is not to intervene, if left unchecked, then discrimination will be developed over years of hepatitis B is difficult to predict what sort of condition, I am afraid that time can not avoid each HBV carriers, so we feel that the Forum should also be involved in advocacy, promotion of anti-discrimination campaign, so to participate in came.
Moderator: It should be said to shine on the liver of the Forum in terms of rights is quite large, armored cavalry defenders Moderators as what time to do this specific thing?
armored cavalry: It should be September 2003, that is, a month after I signed up to a very clear sense of the discrimination is, and I had the imagination and my own experience is different, very strong contrast to the phenomenon. about September 10 a few days When the China Central Television broadcast an investigative program, the title of this program is called the Hepatitis B discrimination by the Forum to assist the liver shot to shine, the show put the status of HBV discrimination was revealed out. I see After this film feel more shocking, it should be said that the exact terms of this film I started from a conscious together with other friends to do the work within its capacity.
Moderator: What are the specific work?
armored cavalry: the beginning of science is carried out propaganda on the network, such as in various Chinese BBS forum post to friends on various forums to science's knowledge of hepatitis B, and the protection of national interests related to some of the provisions, a number of documents At the same time introduce the case of discrimination, calling attention to society, this is the beginning of the work.
Moderator: later evolved into, as I understand there may be some cases of hepatitis B the start of Rights.
gold armored cavalry: Yes, after the work is also done online, while some like the complaints from the work of reporting illegal medical advertisements, and to assist some of his comrades to rights litigation work. The other is in response to the government's call for the government to put forward some reasonable proposals work.
Moderator: When do these users how their reactions are like? very supportive forum where users do?
armored cavalry: Yes. It should be said for a long period of time relative to the liver According to the rights and benefits only the rights of a hepatitis B carrier layout, and so far is the most important and influential a rights forum. should be said that the country's netizens advocated for a picture for the liver of hepatitis B is very supportive of civil rights movement, like our online promotional work, all users will actively participate in forums, as false advertising, these effects are very poor, we also have a lot of work to make a lot of friends, for example, some users give written concurrently in charge of departments, or send these shoot down to the relevant departments. There are some friends to tear up the spontaneous number of hepatitis B in the field of false advertising, small ads, big ads, banners, posters, so that more people fall. well, like some of our policy suggestions to do the work such as July 2004, the Ministry of Health announced the civil service examination standards draft, in our forum attracted the concern of users are very concentrated.
Moderator: they were revised up?
armored cavalry : amendments to draft, then we believe that there are still many unreasonable composition, according to the liver relative to users of this forum have a large spontaneous discussion, a lot of friends to the mailbox for comments published by e-mail, send a letter at the same time We also strongly support the Forum drafted a proposal, this last proposal is a few thousand signatures, but there is a hand to the Ministry of Health. Finally, we are very pleased to see that in January 2005 of the Civil Service officially announced medical standards which to complete the embodiment of our users and our liver phase of these forums made according to the main recommendations.
Moderator: Could you say something specific.
armored cavalry: his medical standards in the Civil Service 7 section which provides that the risk of hepatitis B carriers of hepatitis excluded, and the medical form attached to the inside back to this one without HBV markers, ie, when the civil service exam will not check this check this to full expression of our main views.
other like litigation in the case rights, our friends around the fellow is also a positive action to provide a lot of help, such as legal aid, financial support. For example, we recently had one in Tianjin case, is a unit of university graduates with the signing of a tripartite agreement, the agreement was unilaterally tore up the unit, so that the students put the units in a statement on the report, known as Tianjin, the first HBV discrimination case to be the case hepatitis B in Tianjin and Beijing's support for his comrades. For example, when hearing the case, the Beijing to Tianjin to support his comrades, Tianjin fellow wearing a T-shirt banners also support him, as well as Beijing and Tianjin comrades for his contributions, financial support from the He did such a lawsuit.
Moderator: Moderator should be like a shadow participated in this event?
shadow: this time to the things I did not participate in Tianjin, one is work time, that time is not a Saturday, the second Sunday, can not go. Some of our friends are friends in private, very familiar, and they themselves have passed, we gave him some help, because some people come and need financial resources, appropriate to give them some help. < br> armored cavalry: and this student was dismissed from, and no income.
Moderator: That is the forum's users themselves spontaneously.
Shadow: Yes, spontaneous.
Moderator: Now specifically for this case to what extent do?
armored cavalry: May is probably the case on file, opened the three tribunal, but so far has not been sentenced. this case we believe that the time delay has been long enough, so we hope this case a decision as soon as possible.
Moderator: Moderator shadow would like to ask you a forum for veterans to shine on the liver level, specifically in the liver to shine when the forum has been the scale of comparison big?
shadow: 02, when the beginning is because some people in life have been a certain amount of discrimination, such as premarital or by a woman after child birth parents or other family had been under pressure, some damage to her life, we all need to find friends, they began to understand. the beginning of the rights may be a way to help the state, is this a big problem encountered with the help of all the spontaneous, the event was equivalent to more more, there is as similar to the armored cavalry coming out of such a figure on the rights of the public welfare activities in this area compared to do more.
wormwood cool: In the past there is no organization like she has a Nvwang The boyfriend is hepatitis B carriers, life and death of her parents do not agree with them, she approached us for assistance, we gave her parents do work, I love non-carriers, together we do the work for her parents. < br> shadow: making friends over a good forum, because the forums are our comrades, the liver to shine Well, we are one family, so we are comrades in arms. may have friends, their comrades in other cities, when families encounter many difficulties or mental need some comfort, it may meet in Beijing to attend a large event, if you have any questions on the economy would spontaneously give some help, purely spontaneous.
chair by: Shadow Moderator should be making friends is more in the line, I heard through your established by numerous match.
shadow: there is no right, because I myself also like this, because I told my husband awareness is through the forum, the problem is that many new comrades to join the forum in question, in the final analysis we have come together through forums, in fact I was their own experiences, I myself.
Moderator: You lovers a carrier are you?
Shadow: Yes, he is a carrier.
Moderator: match in the forum into one of these lovers there is the middle one is a healthy carrier?
Shadow: There are ah, wormwood is a cool moderator.
wormwood cool: My marriage has nothing to do with the forum.
armored cavalry: I know.
Shadow: There are several. my classmates that I introduce her come in, but she spoke very little on the inside, her husband is a business, and now a baby is healthy.
armored cavalry: I know for many, such as also have this in Zhengzhou a situation, the forum fellow his own classmates, friends, comrades introduced to the other.
Moderator: Now they live very well.
armored cavalry: Yes.
Moderator: I would like to ask about the shadow owner, when you bring together what is the biggest obstacle?
Shadow: I think also good, because when we are at least carriers of hepatitis B liver function are very stable for so long, in fact, international speaking, we consider the normal liver is healthy, and it's daily routine of life is also quite good, the greatest resistance to the parents from each other. But okay, I think I know these people here in this area are pretty good, not too concerned, to my friends around me, I openly told them, no one cares I.
Moderator: there is a channel like us, we do not care about, in fact, real life there are still many, we all look at the issue of science.
there is no case to share with you, such as now, many users post on the forum are afraid to tell their parents that they are hepatitis B carriers.
shadow : I think the mentality, I also see many new users often write such things, some people worry that I can not find friends, and some people worry that after I found my body will not be what I told my parents what to say, I found a body not so good friends, in fact, are whole grains, do not know what the problem is. our own mentality to maintain a good attitude and lifestyle of time better, we work hard allow themselves to be a winter ridge strength. Because we are not in good health after this event, I hope we all can focus totally to themselves and their families to take care of, it is also very important aspects.
wormwood cool: This is is a real issue, how to take the risk of his own family, not because of two people, but do a worse themselves.
shadow: Some carriers of hepatitis B is very confident that I could find a good friend? me to be able to with her into the marriage? we can to children? my future treatment of how to do? We want to enrich their own lives to make their forces better, can be recognized by others.
Moderator: like Wormwood is a carrier of cool, her husband was not hepatitis B carriers, and if so the shadow of Wormwood moderators to help convince her parents how cool it?
shadow: I understand the wormwood cool, I definitely want to fix them To understand each other, a feeling of both of them are really good, but the exchanges with their parents. Her work is very stable, very good, they would love to learn, but the physical carrier in addition to the stigma of this area so, other aspects are very good. filial piety, character has always been very good, and sent the parents agreed that she is a carrier, a lot of people not feeling too great, no sick all day long, or how accommodating, kind of I think it is very good communication.
Moderator: Moderator of wormwood cool, you had is how to overcome?
wormwood cool: I basically have not encountered this resistance, because I was and I a very understanding wife two years later by chance I found carriers of medical units, of course, is to find out after we get married, and has also been done ideological struggle is that I made for the two of us break up, he says that you have disease now.
shadow: this thing will not abandon many of her good.
wormwood cool: I did not love the idea that I proposed, I see now I found out that there is this , we were still together Well, actually came together was also quite ripe for.
armored cavalry: I think as an international point of view, are hepatitis B carriers carrying information as to the protection of personal privacy, of course, You can tell your spouse or tell your lover, but there is no need to tell your lover's parents, because that is your private information or a matter between you two, so long as you love each other love you, he aware of it.
Moderator: As long as he agreed to the line.
wormwood cool: mainly to see how to deal with this matter the parties themselves, if it is a very traditional family may have to parental consent.
gold armored cavalry: but generally I think that one is from an international point of view this is a practice, privacy, and the second, our country also provides parents can not do, or interfere with the marriage, so this situation should be your personal things or is a matter between you two.
Moderator: Moderator armored cavalry would like to ask, so many rights in the event you are in no particular outstanding example to share with friends, because many users worry about, especially in employment.
armored cavalry: as carriers of hepatitis B is often received in some areas of social life, injustices, such as employment, relatively large, the situation is very serious. because the present situation we countries for which no legal protection for a very good, so it should be said that this situation is common, and the event is very difficult for defenders. but I would like to introduce the rights of our cases in Beijing, there was a Fang Lin, the female comrades called her employment at the Capital Airport Beijing Capital International Airport when they were refused employment, she protested to the department of labor arbitration, labor arbitration departments decision to hire the gay capital of the airport, but the airport is still not implemented then appeal to the legal department, or the decision to give employment to the Capital Airport.
another example, in the last year, when college begins, Xinjiang University and Xinjiang Agricultural University, a total of 156 school students were forced to drop out and then we helped Yi Li, one of the students called to assist her in a lawsuit filed to the court, sued the school. results in the prosecution soon after, the school back to school to allow her to continue her education, this would mean no trial to get the victory, This is called without trial and win. She sued the school results returned to school to continue their studies, but other students who do not sue there is no way back to school, only to wait until next year and the next year re-learning.
Ai Grass cool: This is the initiative to safeguard their rights and the negative attitude of the two results, each person to help themselves to their own.
Moderator: The hepatitis B carriers should stand up and defend their own interests.
After all, the success of these activists to a minority, and you have some other way, because the three all have to work, there is no real experience to share?
wormwood cool: aiming at the work did not suffer any discrimination.
armored cavalry: Company employees or the general exception for the old.
wormwood cool: which had already been working for two years, and I think if it was then when the job will definitely do not do body check it out. < br> shadow: I do gradually card checked out, because I was working in the hotel was in the field work, to do a health certificate, check, or our manager came out fine, say you this right, you three months leave and then come back. because there was a lot of people are already familiar with, and that you can definitely cure for three months, you healed to come, is to say I think three months is certainly not entirely negative, the International on the results of this study has not yet come out, I said forget about I to resign.
wormwood cool: real life, just when the job is now to companies that will have a general induction physical examination, so it off in fact quite sad.
little place I could feel a little better, a small local units are used as a welfare check for you, it does not matter.
shadow: hard to say, to see which units had.
armored cavalry: Let the laws of the State in which the law says no one can give you the medical unit, you can know your private information, at present there should be no, although he did not protective, but there is no such rule that you have the right to check, but Now the reality is, all units are in the investigation, the school also check, in fact, is a wrong approach, a practice of infringement, so for this the wrong way I think we have a lot of hepatitis B carriers in the challenge this kinds of wrong. such as hepatitis B carriers may be asked people to check some of the media there have been some discussion on that HBV carriers who want to do your medical examination, which asked people to check is right or wrong. I think the first to discuss the premise is that the current medical practice is right or wrong, if the examination itself is wrong, in itself enough to have no legal basis, is itself a tort, we challenge this wrong and is reasonable for.
Moderator: medical practice itself may be right.
armored cavalry: No, the job of domestic and international medical school is not required, only some special industries, such as the United States, only the police as I understand the industry to undergo a medical examination.
Moderator: That is, there are some problems on their own examination.
armored cavalry: Yes. and now the voice of the country has a lot of practice calls for the re-examination of these considerations, such as the People's University Professor Gu raised in Southern Weekend should abolish all forms of medical examination should be voluntary.
wormwood cool: Yes, and should not be a necessary condition.
armored cavalry: the Friday and the Minister of Health I Wang Yongde to do with the program on CCTV, the king of Ministers is also very clear that the medical examination of the results of hepatitis B carriers were only by doctors and carriers I know, can not tell a third party, if you tell a third party is against the law , so I think something like this entry medical examination, entrance examination, medical institutions, check out the results, the examination results to tell employers and schools are without legal basis, the wrong way, not in line with international practice, but also, and we State law contrary to the spirit and leadership.
Moderator: That we must first clear the understanding of users, and then have to defend their own interests.
Now you what I am doing what Rights Protection ?
armored cavalry: We carried out the liver to shine Rights Forum, said the work should include several aspects, one is the cooperation with China Foundation for Hepatitis Prevention and Control conducted a number of popular science propaganda work, the second aspect is that many users are some complaints during the reporting illegal hepatitis B ad work. The third aspect is the active participation of the country's legislative process, to the legislature and the relevant government departments to make reasonable suggestions work, this can give a few examples.
such as this year's draft labor contract law in March, when introduced, to shine in the liver, there are many forum users are very concerned about, and put forward many good suggestions, the final forum in the liver to shine on the basis of the views of users developed a 20,000 words about the proposal letter, and submitted to the NPC Law Committee. In this proposal which we believe the labor contract law to section 8 of the observations and recommendations in section 8, which is so specified, he said, employing has the right to know the physical condition of workers, we think this one is not in line with international practice, but also does not meet our country's constitutional principles and the principles of privacy protection, because the unit had no right to know the physical condition of workers, at least he did not unrestricted right to understand the physical condition of workers, he could be limited, as in some very specific industry, there are special requirements on the physical condition of the industry, it can with limited knowledge of the industry-related physical health conditions. absolutely is not unlimited, how you want to know on how to understand, like how to check on how to search, this is completely wrong. So our proposal is that the physical condition of the employer to restrict the right to know, and also the employer medical examination develop a national standard.
another, we have recently learned that the health sector is being revised regulations for public places. In the old regulations which provides public places, hepatitis virus carriers can not engage in public service industries, and we that this is contrary to the basic scientific knowledge, but also contrary to the Constitution of our country that some of Dafa and Communicable Disease Prevention Act which clearly defined the principle of not discriminate against carriers of infectious diseases. So there are users in our forum recently launched on the public workplace health dimension of constitutional review of regulations movement, this book has been written Visean out the review, is the liver relative to the rights and benefits according to our inside. like this review when we have done in 2003, is the constitutional dimension of the civil service examination review, then we feel very pleased, when the mainstream media have given the report, and the final abolition of the civil service examination standards for the discrimination of hepatitis B carriers, so we the public health management of the revised regulations is to give high hopes.
s Rights Protection of four human rights activists is the work of some cases, like the first case of discrimination against hepatitis B in Tianjin, Wu far we have a picture for many of the liver fellow forum users and moderators have the support of him, this kind of case we will continue to do.
friends: I am a high school physical examination found that hepatitis B carriers, the school let me go home, this practice school right?
armored cavalry: This approach is certainly wrong, there is no basis for the first , under our current national authority of the medical file, hepatitis B carriers live a normal life, learning is an ex should not be limited, but also as the right to education is protected by the Constitution clearly state that citizens have equal right to education, and as we national traditions, from the era of Confucius, there are no classes to teach the national Zuxun, is that everyone will have equal right to education. So what happened as the students that we believe that the practice of school without any reason, but also there is no legal basis.
friends: a call for armored cavalry moderator forum to shine through the liver Hepatitis Foundation can shoot a public service, we have seen Yao Ming, and eat with people with AIDS, the ads work.
armored cavalry: This is step by step, and I think I am very happy that the problems users have begun to mention a very good start, recently we were able to see the streets of Beijing by the Hong Kong Andy Lau stars as performing public service ads hepatitis B shot, it should be public transportation light box advertising, the ad's theme is He is a carrier, it was suggested that reports like this that Andy is not kind, they are carriers also shoot kissing scenes, three What do you think of this report?
wormwood cool: My personal feeling is that They're filming a filming methods, such as kissing, when the measures are not very clear I am not, I personally feel, as long as the oral mucosa of hepatitis B carriers do not kiss if damage is no problem, generally when we have not to be afraid of hepatitis B vaccine injection infected.
armored cavalry: the oral mucosa damage as the damage you must have broken him, that non-carriers of the oral mucosa to damage.
wormwood cool: Generally that the probability of infection like this is still relatively low, now why should it promote the vaccine, now being launched this program hepatic Association, is free to children in remote mountain areas of poverty registered vaccine, I think the whole society should be to vaccinate everyone as long as you have antibodies that protect the vaccine, I think that would not have any concerns.
armored cavalry: and vaccines are cheap, the money can be injected with a full set of 20 yuan.
wormwood cool: either to their own provide very good protection, because we are too many countries, hepatitis B carriers can also give them a living space, I think this is a very good thing both sides, we should do.
because they do not such as AIDS, AIDS can not be obtained by immunization of antibodies, but hepatitis B is possible.
shadow: I find it very strange phenomenon, so many people emphasize physical examination, emphasizing fear of infection to others, but this is science way to avoid this kind of thing, why not do it, why do not the vaccine is very simple to play yet. Many people say that I am very healthy, I strongly do not fight.
wormwood cool: the entire community is We shared, HBV carriers have the right to share some of the facilities the whole community, something I think we should consider the issue from another angle to.
armored cavalry: My view on this issue is this, come from the medical about hepatitis B carriers a kiss, I want to have an analogy, we can often see some AIDS awareness materials, that it says very clearly that AIDS is not transmitted through kissing., I think the one for hepatitis B aspects of kissing is very low probability of transmission, because the oral mucosa must have broken the other side ...
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